Day
2:
Day
two, and I awoke a little hesitantly. Mornings have been strange these last few
weeks. Instead of waking gently, and quietly reeling my brain in from sleep, I
now wake with a startling confusion, that “something’s wrong” feeling. My next
thought is that this is a dream, and a very bad dream at that, but it is
quickly followed by reality’s wake up call, something is going on that I needed
to remember, and very quickly. And there it is, I recall the last few weeks,
x-rays, tests, diagnosis, chemo. Ah, that’s right, yesterday was chemo day one.
Since my diagnosis I had been incredibly anxious to begin my treatment, and
yesterday, it had happened. I did a mental scan from head to toe, headache, no…
nausea, no… pain at injection site, no, rib pain, some, muscle pain, no.
Hmmmm…. I think that I actually felt better this morning than I have in a days.
I know it is early in the process, but I am thrilled, that at least for this
morning, I feel ok.
So,
you may be wondering why I have decided to keep this blog, and to invite you to
join in. I have no idea what the future will bring, at least the near future,
but I know that things will change, maybe swiftly, and I wanted to have a way
to communicate with my friends and family in a very honest, and open way, so
that they could keep up with my progress, and know where to direct their
prayers. We’ll see where it goes and how it goes, but for now, if anyone wants
information, they can come here and read of my adventure. This does not mean
that I do not want phone calls or other correspondence, I do, I just wanted to
give everyone another option and leave myself a creative outlet (imagine that).
Yesterday,
I was given everything but the kitchen sink. Today, I go back for the kitchen
sink. After that, we will be on a one-week cycle for the trial, and a 21 day
cycle for the standard protocol. I feel so incredibly blessed to have been
randomized into the trial, and into the arm, which will receive the extra
biologic medication. It seems that I will be a trail-blazer here, as I am the
first in the Midwest to receive this drug. It is no the first time it has been
trialed, and they have seen good success in previous trials, so I am very
encouraged and so thrilled to have anything available to increase my odds.
So,
the sun is shining, the birds are singing, my treatment has started, and I am
happy. It’s going to be a good day, followed, I hope by many more like it. I
see this as my winter, a season I dislike, but must trudge through with its
gray skies, cold, and slippery ice. Winter can be an uncomfortable place, but
there are moments of beauty if you look for them. I intend to look for them in
this season of mine. I intend to find them every day. Today, I don’t need to
look very far.

Hi Amy,
ReplyDeleteI've read your posts and I'll be keeping up with your blog. Physicians are getting better and better and so are the tools they have to work with. Being randomized into the treatment arm of a trial is a good thing and will boost the already good standard of care you will receive. I'll keep you in my thoughts and just know I'll be rooting for you all the way through this.
Matt Medlin
You are so right Matt. With my issues, my best chance will be found in clinical trials. I have an upcoming appointment to get on board with Ohio State's James Center which should open opportunities for further unique trials in the future. Do you think there is time for you to switch your focus and work this little problem out for me?
ReplyDeleteI appreciate your caring... you are such a sweetheart Matt.
Amy