Day
9
The
last five days have been full, and certainly interesting. I have picked myself
up off of the floor, dusted myself off, and think we are moving forward. Monday
marked the insertion of my first power port. Not exactly the kind of bonding experience
I wanted to have with my sister, but here we are with matching ports. So, my
thoughts on placing a port are this….. Someone should have mentioned that it
was more surgery than a “procedure.” The morning after the port was installed,
I mentioned that it felt like I had a straw in my neck, and was reminded by my
husband, Chris, that actually, that was almost exactly what it was. Hmmm.
Accessing the port the first time was an interesting sensation that I am not
anxious to repeat, but I could immediately see the value, and the veins in my
arms thank the interventional radiologist.
Monday
afternoon found us in Columbus where I was loved, tended, and fed by Momma Mia,
and Steve. It was a wonderful visit, punctuated by meatballs, and rigatoni that
I can still smell, and a send off breakfast that you couldn’t get at Cracker
Barrel. It makes me giggle to think of all of the goodness in her pantry, which
resembles exactly what would be found there if I had made the list, from
strawberry pop-tarts to orange slices. It was so good to spend some down time
with them in the middle of all of this chaos. We need to go back again soon.
Tuesday
afternoon brought my second opinion appointment at The James Cancer Center at
Ohio State. Chris, and I estimate that my physician there, a real live thoracic
oncologist, must have been at least twenty four, which caused me to note that
all of my doctors seem to be children. Very smart children, but children non-the-less.
Frightening that I am having so little pause turning my future over to children
who have been alive fewer years than I have been married.
The
Dr. at the James, and everyone there, were so kind. After looking over my records, the group decided that my physicians
were doing everything they would do, which was very reassuring. The only
additional tests they would recommend would be on a molecular level to
determine whether my cancer cells had one of three specific markers. If that
were to be the case, they might recommend a new, targeted treatment. I believe
that both The James’ doctors, and my local guy will work together to get those
tests complete. I am finding it funny that I actually know two molecular
biologists, but neither of them works in the oncology field. Perhaps I should
exert some persuasion.
Day
8 arrived and found me back at The Christ Hospital Cancer Center for week 2 of
my trial drug. Really, I cannot say enough about the wonderful staff there.
After reviewing all of my labs and fussing with me about loosing too much
weight last week, my oncologist pronounced that my labs looked like they hadn’t
touched me. Good news on the white and red cell count, and probably accounts on
my bouncing back so well. I am so blessed, and have no illusions that this good
news is anything but the result of all of my family, and friends’ prayers.
Again, and again, I thank you.

Do you remember which biomakers they wanted to screen for? The terms we throw around are pharmacogenomics or personalized medicine. ie. "I think targeted therapies, that utilize the specificity of pharmacogenomics, represent the future of personalized medicine" Say that before you adjust your pocket protector and other biotech geeks will give you props. If you remember and post the genes I'm interested, if not not biggie. Happy belated mothers day and if hat recommendations are being accepted I'll recommend this one! (http://www.boozingear.com/media/catalog/product/cache/7/image/5e06319eda06f020e43594a9c230972d/M/S/MSC-0131/-Beer-Helmet-Camo-Beer-Hat.jpg)
ReplyDeleteMatt... You knew exactly the hat I had in mind.... I thank you! Quite awesome indeed:)
ReplyDeleteThe biomarkers they are looking for are EGFR, KRAS, and ALK. They are already using targeted treatment for insulin-like growth factor.
I am still waiting to see if the molecular pathologist has enough to work with, or if they need more to study. It seems that I have little pieces of me traveling all over the country as part of this trial which seems a little strange, but at least part of me is able to travel this spring. Miss you all and wish I was able to run down to the beach to kiss on all of the Medlin babies...